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November 2011

Dear NVA Friend,

Ninety percent of NVA’s revenue continues to come from individual donors, because most corporations and foundations with a focus on women’s health issues continue to neglect vulvodynia.  This means that it is up to us, who suffer from vulvodynia, to raise the funds needed to enact change for ourselves and for the women who come after us.


Last year, our donors’ generosity enabled NVA to award a pilot grant to researchers at the University of North Carolina.  The team included preliminary data collected with NVA’s funding in an application to the National Institutes of Health (NIH) and was successful in obtaining a grant 10-times the amount of our pilot award!  What’s more, this group has already published novel study findings and is now applying for a new $1 million NIH grant.  (We will summarize the study’s findings in our next newsletter issue.)


NVA’s pilot grants are vital to researchers studying vulvodynia, and once again, we’re asking for your help in supporting deserving applications.  This summer, we received 16 funding requests and our expert medical review panel recommended that NVA’s Board consider funding six outstanding proposals seeking a total of $180,000.  If funded, these studies will aid in:   

  1. Identifying viruses, bacteria and/or inflammatory compounds in the vulvovaginal tissue that may be responsible for triggering/maintaining vulvodynia;


  2. Classifying vulvodynia subgroups based on the extent of abnormal peripheral and central pain processing, vestibular skin abnormalities and pelvic floor muscle dysfunction.


  3. Determining specific pelvic floor muscle abnormalities in different vulvodynia subtypes;


  4. Understanding vulvodynia’s effect on fertility, pregnancy and childbirth; and


  5. Identifying abnormal urogenital symptoms experienced in childhood by women who develop vulvodynia later in life.

Please help the NVA fund as many of these projects as possible by making a tax-deductible donation today – 100 percent of your donation will be used for research.  Thank you!

Sincerely,

Phyl full signature  

Phyllis Mate
President

 

Christin Veasley
Executive Director


The National Vulvodynia Association is a nonprofit organization that strives to improve women's lives through education, support, advocacy and research funding. The NVA is not a medical authority and strongly recommends that you consult your own health care provider regarding any course of treatment or medication.

Last Updated on February 2, 2012