|
NVA’s Online Resource CenterA Letter from our Executive Director When I suffered from severe disabling vulvodynia 15 years ago, there was nowhere to find treatment information and support. Fortunately, it won’t be the same for you. We revised our website so you can immediately access our self-help guide and in-depth articles by vulvodynia specialists on different treatments. Click here to see what’s available at our online resource center. Read more… NVA Launches New Patient Learning ProgramPlease don’t leave this site without viewing our new online learning program for women with vulvodynia – Everything You Need to Know About Vulvodynia. This program will answer many of your questions about vulvodynia and give suggestions for improving your quality of life. It is free to all viewers and can be accessed at: http://learnpatient.nva.org Please Participate in an Important SurveyThe NVA needs 100 more women to participate in our cost-of-illness study. Upon enrollment, you will receive a complimentary copy of NVA's self-help guide. After completing the survey, NVA will give you a complimentary one-year subscription to our newsletter. If you live in the US and have been diagnosed with either generalized vulvodynia or vulvar vestibulitis syndrome (aka vestibulodynia), you are eligible to participate. The survey asks questions about lost work hours and out-of-pocket expenses related to having vulvodynia. NVA intends to use the survey results to convince Congress and the NIH that we need much more federally funded research on vulvodynia. Participation requires only 3 hours of your time over the next six months. With the use of an NVA-supplied calendar, you keep track of your vulvodynia-related expenses, such as prescription medications, doctor visits and over-the-counter remedies. For additional information, or to participate, please visit: http://www.nva.org/costsurvey Dr. Oz Show Features Vulvodynia Segment
On Monday, January 11th, Dr. Oz discussed the diagnosis and treatment of vulvodynia with Jennifer Ashton, MD, a New Jersey-based obstetrician-gynecologist and CBS News medical correspondent. The segment also featured interviews with Lisa and Debbie, two vulvodynia sufferers, as well as with Christin Veasley, NVA's associate executive director, and her husband Melvin. (Pictured left to right: Chris, Debbie, Lisa, Melvin) To view a 5-minute clip of the segment, please visit: http://doctoroz.com/videos/vulvodynia ABC’s 20/20 Features Segment on Sexual Pain, Vulvodynia
|
 |
 |
On Friday, August 7th, Dr. Timothy Johnson, ABC’s Chief Medical Editor, discussed the diagnosis and treatment of painful intercourse on 20/20 with Andrew Goldstein, MD, and Amy Stein, MPT. Dr. Goldstein directs the Center for Vulvovaginal Disorders in Washington, DC, and New York City. Ms. Stein, a New York-based physical therapist, specializes in the treatment of pelvic and urogynecological pain disorders. The segment also featured the stories of two women, as well as an interview with Christin Veasley, NVA's associate executive director, and her husband Melvin. To view the segment online, click here.
Click here to see new books on vulvodynia by Dr. Goldstein, Ms. Stein and others.
The National Vulvodynia Association (NVA) is an educational, nonprofit organization founded to disseminate information on vulvodynia. The NVA recommends that you consult your own health care practitioner to determine which course of treatment or medication is appropriate for you.
Last Updated on July 7, 2010