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NVA Launches New Patient Learning Program
Please don’t leave this site without viewing our new online learning program for women with vulvodynia – Everything You Need to Know About Vulvodynia. This program will answer many of your questions about vulvodynia and give suggestions for improving your quality of life. It is free to all viewers and can be accessed at: http://learnpatient.nva.org
NVA’s New Online Resource Center
A Letter from our Executive Director
When I suffered from severe disabling vulvodynia 15 years ago, there was nowhere to find treatment information
and support. Fortunately, it won’t be the same for you. We revised our website so you can immediately access our self-help guide and in-depth articles by vulvodynia specialists on different treatments. Click here to see what’s available at our online resource center. Read more…
Please Participate in an Important Survey
The NVA needs 100 more women to participate in our cost-of-illness study. Upon enrollment, you will receive a complimentary copy of NVA's self-help guide. After completing the survey, NVA will give you a complimentary one-year subscription to our newsletter. If you live in the US and have been diagnosed with either generalized vulvodynia or vulvar vestibulitis syndrome (aka vestibulodynia), you are eligible to participate. The survey asks questions about lost work hours and out-of-pocket expenses related to having vulvodynia. NVA intends to use the survey results to convince Congress and the NIH that we need much more federally funded research on vulvodynia. Participation requires only 3 hours of your time over the next six months. With the use of an NVA-supplied calendar, you keep track of your vulvodynia-related expenses, such as prescription medications, doctor visits and over-the-counter remedies. For additional information, or to participate, please visit: http://www.nva.org/costsurvey
Do you Shop at Amazon or GoodShop?
You can raise funds for vulvodynia research when you shop online. Simply click on one of the links below before you go to Amazon or GoodShop and a percentage of your purchase price will be donated to the NVA. Thank you!
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