Support

It is important to be able to talk with other women about the physical symptoms of vulvodynia and related emotional issues. Many women find that speaking to others who have vulvodynia is both a good source of information and the best way to overcome the emotional isolation that may result from having this disorder. The NVA has identified the below support groups and email contacts for those who choose this option. Please note that some of the below listed groups may be working to build a support group and, therefore, may not always be actively meeting. The groups may also take breaks from meeting on occasion, and some groups may also meet more often than others. If you need any assistance connecting with one of the below listed support group leaders or email contacts, please e-mail Michelle Living.

Support Contacts and Support Group Meetings

 

Calgary (Alberta, Canada)
Contact:
Crystal ; ecdade2008@gmail.com
Upcoming Meetings:

No Meetings, email support only.

Location:

Calgary, AB

Sun City (Arizona)
Contact:
Randi ; courtice@cox.net
Upcoming Meetings:

Please email for information on other upcoming meetings.

Location:

Please email for specifics and directions.

San Francisco (California)
Contact:
Terry ; tsbohrer@yahoo.com
Upcoming Meetings:

Please email for more information on upcoming meetings.

Location:

Please email for specifics and directions.

Middletown (Connecticut)
Contact:
ctpelvic@gmail.com
Upcoming Meetings:

Please email for information on upcoming meetings.

Location:

Please email for specifics and directions.

Royal Oak (Michigan)
Contact:
The Women’s Urology and Pelvic Health Center ; 248-898-0898
Upcoming Meetings:

The Pelvic Pain Support Group of Beaumont Hospital helps women with pelvic pain (including but not limited to IC, vulvar pain, pelvic floor dysfunction, among other forms of uro-genital pain) get the support of others with similar problems, and encourages participants to take active, positive steps toward coping. Staff from the Women’s Urology and Pelvic Health Center will facilitate the group. The group meets monthly and is free of charge.

For 2020, meetings will be held on Thursdays, approximately once per month from 11:30 am to 1:00 pm. The meeting dates are: January 9, February 13, March 12, May 14, June 11, July 9, August 13, September 10, October 8, November 12, December 10.

Location:

Women’s Urology and Pelvic Health Center
2 South, Beaumont Hospital
3601 W. 13 Mile Road
Royal Oak, MI 48073

Saginaw (Michigan)
Contact:
Kathy ; adatte5689@charter.net
Upcoming Meetings:

No Meetings, email support only.

Location:

Saginaw, MI

New York (NY)
Contact:
Judy ; drjudysi@gmail.com
Upcoming Meetings:

No meetings, email support only.

Location:

New York City, NY

Rochester (New York)
Contact:
Katy Wright ; nvarochester@gmail.com
Upcoming Meetings:

No Meetings, email support only.

Location:

Rochester, NY

Tulsa (Oklahoma)
Contact:
Jodi ; jodilyncole@gmail.com ; 918-520-1752
Upcoming Meetings:

Please email or call for information on upcoming meetings.

Location:

Tulsa Spine & Rehab, 3345 S Harvard Avenue #101 Tulsa. Please email or call for specifics and directions.

Portland (Oregon)
Contact:
Krista ; sexualpainmatters@gmail.com
Upcoming Meetings:

No meetings at this time, email support only.

Location:

Portland, OR

Exton (Pennsylvania)
Contact:
Allison Landry ; amlandry5@gmail.com ; 215-920-9937
Upcoming Meetings:

Meets once/month, 6:30 pm – 7:30 pm. Please email or call for more information on upcoming meetings.

Location:

Empower Physical Therapy
470 John Young Way, Exton PA 19341
https://www.physicaltherapyempower.com/.

Kent (WA)
Contact:
Gerry ; carrickrock@yahoo.com ; 206-310-2540
Upcoming Meetings:

No meetings, email, phone, and text support only.

Location:

Kent, WA