Support

It is important to be able to talk with other women about the physical symptoms of vulvodynia and related emotional issues. Many women find that speaking to others who have vulvodynia is both a good source of information and the best way to overcome the emotional isolation that may result from having this disorder. The NVA has identified the below support groups and email contacts for those who choose this option. Please note some of the below listed groups may be working to build a support group and, therefore, may not always be actively meeting. The groups may also take breaks from meeting on occasion, and some groups may also meet more often than others.

Keep in mind that your support contact is a volunteer and has other women she keeps in touch with. It can take up to one week for her to contact you. Please don’t email or call her repeatedly. NVA considers a reasonable amount of contact to be once or twice a week, primarily by email. Phone calls are limited to 30 minutes. Please be considerate of your support person’s time. A support contact has the right to terminate a relationship if she feels that an individual is overly demanding or abusive. If you need any assistance connecting with one of the below listed support group leaders or email contacts, please e-mail Michelle Living.

Please note, due to Covid-19 in person support group meetings may have been suspended.

Support Contacts and Support Group Meetings

 

Vancouver (British Columbia, Canada)
Contact:
Leilani ; leilanifay@gmail.com
Upcoming Meetings:

Email support, and Support Group.

Location:

Vancouver, BC

(California)
Contact:
Cheryl ; jmorris4550-nva@yahoo.com
Upcoming Meetings:

No meetings. Email and phone support. Special interest in post-menopausal issues and lichen sclerosus.

Location:

California

San Diego (California)
Contact:
Anne ; anne@comprehensivetherapy.com
Upcoming Meetings:

Support group. No email support. They meet once a month. Please email for more information on upcoming meetings.

Location:

Please email for specifics and directions.

San Francisco (California)
Contact:
Terry ; tsbohrer@yahoo.com
Upcoming Meetings:

Please email for more information on upcoming meetings. Email Support.

Location:

Please email for specifics and directions.

Middletown (Connecticut)
Contact:
ctpelvic@gmail.com
Upcoming Meetings:

Please email for information on upcoming meetings. Email support.

Location:

Please email for specifics and directions.

(Florida)
Contact:
Stacie ; Patmorecoventry@gmail.com
Upcoming Meetings:

Email support. No Meetings.

Location:

Florida

Royal Oak (Michigan)
Contact:
The Women’s Urology and Pelvic Health Center ; Please call 248-898-0898 to be added to the pelvic pain support group email list. You will receive one email per month with instructions on how to RSVP and sign up.
Upcoming Meetings:

The group currently meets virtually on the second Thursday of every month from 11:30 am to 1:00 pm and is available to women in Michigan only. Here are the 2021 dates: AUG. 12, SEPT. 9, OCT. 14, NOV. 11, and DEC. 9.

The Pelvic Pain Support Group of Beaumont Hospital helps women with pelvic pain (including but not limited to IC, vulvar pain, pelvic floor dysfunction, among other forms of uro-genital pain) get the support of others with similar problems, and encourages participants to take active, positive steps toward coping. Staff from the Women’s Urology and Pelvic Health Center will facilitate the group.

Location:

All meetings are currently virtual.

Women’s Urology and Pelvic Health Center
2 South, Beaumont Hospital
3601 W. 13 Mile Road
Royal Oak, MI 48073

Saginaw (Michigan)
Contact:
Kathy ; adatte5689@charter.net
Upcoming Meetings:

No Meetings, email support only.

Location:

Saginaw, MI

New York (NY)
Contact:
Judy ; drjudysi@gmail.com
Upcoming Meetings:

No meetings, email support only. Special interest in post menopausal issues.

Location:

New York City, NY

(New York State)
Contact:
Piper ; piperbreeze2@gmail.com
Upcoming Meetings:

No Meetings. Email and phone support. Special interest in support for younger adults late teens and early to mid 20’s. Piper is in her early 20’s.

Location:

New York State

Tulsa (Oklahoma)
Contact:
Jodi ; jodilyncole@gmail.com ; 918-520-1752
Upcoming Meetings:

Please email or call for information on upcoming meetings.

Location:

Tulsa Spine & Rehab, 3345 S Harvard Avenue #101 Tulsa. Please email or call for specifics and directions.

Portland (Oregon)
Contact:
Krista ; sexualpainmatters@gmail.com
Upcoming Meetings:

Email and group support. Zoom support meetings on second Saturday of each month, 10-11:30 PST; email for the link.

Location:

Portland, OR

Doylestown (Pennsylvania)
Contact:
Heidi Weber ; heidi.johanna.weber@gmail.com ; 801-712-2472
Upcoming Meetings:

Please email for information on upcoming meetings. Email and phone support.

Location:

Please email for specifics.

Exton (Pennsylvania)
Contact:
Allison Landry ; amlandry5@gmail.com ; 215-920-9937
Upcoming Meetings:

Virtual meetings once/month, 6:00 pm – 8:00 pm. Please email or call for more information on upcoming meetings.

Location:

Due to Covid-19 all meetings are virtual for the time being.

Empower Physical Therapy
470 John Young Way, Exton PA 19341
https://www.physicaltherapyempower.com/events.

Kent (WA)
Contact:
Gerry ; carrickrock@yahoo.com ; 206-310-2540
Upcoming Meetings:

No meetings, email, phone, and text support only.

Location:

Kent, WA