National Vulvodynia Association
Improving Women's Health through Education, Research, Support and Advocacy
Persistent vulvar pain affects women of all ages, including adolescents
View ongoing research studies that need participants with vulvodynia
Vulvodynia can lead to feelings of isolation, anxiety and depression
Vulvodynia is prevalent in all ethnic and racial groups
There are experts who can help!
Find a U.S. health care provider online. If you live outside of the U.S., please contact us for a list of providers. Providers who wish to join our referral list can do so here.
You Are Not Alone
Soph Myers-Kelley. Now, five years later, I've undergone many transformation journeys beyond those two first diagnoses. Part of that journey is coming to accept PVD and vulvodynia are natural parts of my life at this time. My pelvic pain is largely attributed to a condition called Ehlers-Danlos syndrome, which affects all of the collagen in my body. I've also found out I'm autistic and have ADHD. But one of the most significant discoveries has been recognizing I am not a cisgender woman, but a transgender, nonbinary ethereal being.
What NVA Can Offer You
For Patients:
- Learn about diagnosis and treatment in online tutorial
- Receive health care provider referral list
- Receive the latest treatment and research information via email
- Connect with one of our support contacts
- Read our self-help, pregnancy, and partner guides
For Health Professionals:
- Place your name on our referral list
- Use our popular online vulvodynia tutorial
- Receive the latest treatment and research information via email
- Receive current research abstracts via email
- Request complimentary patient brochures for your office
Featured Book
For more than 30 years, the National Vulvodynia Association (NVA), a nonprofit organization, has been dedicated to improving the health and quality of life for women with chronic vulvar pain. Subtypes of vulvodynia include provoked vestibulodynia, generalized vulvodynia and clitorodynia. Many sufferers report vulvar burning and painful sexual intercourse. If you are a woman in pain, her concerned partner, or a health care provider who treats vulvodynia, the NVA - with our expert medical board - can assist you. Hundreds of women each year thank us for our incomparable educational materials and support services. Let us help you too.
What NVA Can Offer You
For Patients:
- Learn about diagnosis and treatment in online tutorial
- Receive health care provider referral list
- Receive the latest treatment and research information via email
- Connect with one of our support contacts
- Read our self-help, pregnancy, and partner guides
For Health Professionals:
- Place your name on our referral list
- Use our popular CME-accredited online tutorial
- Receive the latest treatment and research information via email
- Receive current research abstracts via email
- Request complimentary patient brochures for your office
News & Updates
NVA Increases Research Grants to Relieve Vulvar Pain
NVA's executive board is optimistic that at least one of these new treatments will relieve pain in many women who suffer from vulvodynia. We are doing everything possible to make that happen.
NVA Invites Proposals for Winter 2026 Vulvodynia Research Award
Deadline to Submit Letter of Intent is Monday, October 27, 2025. Deadline to Submit Application is Wednesday, December 3, 2025.