Patient Stories

Real Women. Real Pain. A Real Cure.

Look into the eyes of a woman with vulvodynia and you’ll see your mother, your daughter, your sister, your friend. Every day, millions of women of all ages and races worldwide are dealing with this mysterious condition that causes chronic vulvar pain. Sadly, to date, there is no definitive cure.

Look closer into the eyes of a woman with vulvodynia and you’ll also see the shining rays of hope. Hope that there will one day be a cure that will end her suffering and allow her to resume a normal life again, pain free.

We’re honored to present the following stories of courageous women with vulvodynia who have chosen to manage their pain, instead of allowing their pain to manage them. As you read their stories, we hope you’ll see someone you love reflected in each one and do your best to help us find a cure.


Read Callista's Story

Carol B

Read Carol's Story

Céline M

Read Céline's Story

Erin K

Read Erin's Story

Jenny Leigh

Read Jenny's Story

Katie Conrad

Read Katie's Story

Lyn Feinstein

Read Lyn's Story

Martha Klasen

Read Martha's Story

Michelle Living

Read Michelle's Story

Natalie G

Read Natalie's Story

Nicole M

Read Nicole's Story

Pattie M

Read Pattie's Story

Sherrie Underwood

Read Sherrie's Story

Sister Mary Ann

Read Sister's Story

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